Total Orphan Drugs and Vaccine Nation
Cecile has worked as a digital marketing intern at Terrapinn Digital, where she created news and feature content for Terrapinn’s industry leading websites, Vaccine Nation and Total Orphan Drugs. She wrote extensively about the Ebola outbreak in West Africa, including a popular Ebola infographic that has been published in the journal of clinical studies magazine. She also created an online database for rare diseases, researching and writing about rare medical conditions, treatments, research and legal policy surrounding the rare disease drugs industry. Below is a list of links to her work.
Total Orphan Drugs - Covering the Rare Disease Drug Industry
ALS Ice Bucket Challenge - Where Is The Money Going?
How to Start a Biotech: Fundraising and the Future of the Orphan Drug Industry
Gene Therapy Trial For Patients With Mechanical Heart Pumps Has Begun
The Top 20 Selling Orphan Drugs of 2020
Crowdfunding for Orphan Drug Research: Paving the Way for Early Stage Research on Rare Diseases
Team Of Indian Doctors Use 3D Printed Skull To Visualize Skull Before Surgery
FDA Approved Ruxolitinib Shown to Restore Hair Growth in Alopecia Patients
RedHill and RESprotect Sign a Deal Over Chemotherapy Drug
CureDuchenne to Provide Prosensa with $7 Million in Funding for Muscular Dystrophy Drug Research
The Perlstein Lab Raises $2 Million for the Production of Treatments for Rare Diseases
Drug Derived From Milk of Genetically Modified Rabbits to Treat Rare Swelling Disorder
Patient-Centered Clinical Trials Explained
Arena Pharmaceutical’s Pulmonary Arterial Hyeprtension Drug Receives Orphan Drug Status
Promedior’s Myelofibrosis Drug Receives FDA Orphan Drug Designation
The Next Global Child Health Care Priority: Pediatric Cancer Strategies
Insys Therapeutics Receives FDA Orphan Drug Designation for Cannabis Based Drug
FDA to Focus on Female Sexual Disorders at Upcoming Patient Meeting
Mirati Therapeutics Receives Orphan Designation for B-Cell Lymphoma Drug
AbbVie Granted Orphan Drug Status for Glioblastoma Therapy
British Prime Minister David Cameron Announces £300 Million Big Data Human Genome Database Project
BioMarin Sells FDA Priority Review Worth $67.5 Million
FDA Expands Approval of Imbruvica to Treat Chronic Lymphocytic Leukemia
Cystic Fibrosis Patients Sue Medicaid for Refusing Drug Kalydeco
Scotland’s New Rare Disease Action Plan
FDA Patient Focused Drug Development Initiative
The ALS Ice Bucket Challenge: Effectively Raising Global Awareness for an Orphan Disease
Patient Group Victory in Muscular Dystrophy Drug Research
Genzyme Prices Gaucher Disease Drug at $310,250 a Year
Family Photo Scans: The Future of Rare Disease Diagnosis
Hepatitis C: Soon to Become a Rare Disease?
PTC Therapeutics Receives EU Approval for Muscular Dystrophy Drug
Evotec and Shire Team Up to Tackle Fabry’s Disease
KaloBios Ends Drug Development Deal with Sanofi Pasteur